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FG Syndrome Family Alliance, Inc.

Some helpful links

Here are some useful sites for those interested in the FG Syndrome and related disorders.

Opitz Family Network This is a network of families diagnosed with Opitz G/BBB Syndrome.

The Society of Opitz Families Downunder, Inc.This is an organization for Australian families dealing with Opitz FG, G/BBB, or C Syndromes.

Visit our FGSFA International sites:

FG Syndrome Site in Spanish
FG Syndrome Site in Italian
FG Syndrome Site in French

Opitz Trigoncephaly Syndrome Family Network (Opitz C)
Our Kids A website devoted to raising children with special needs.

The Arc of the United States The Arc is the leading advocate for the needs of individuals with developmental disabilities and their families.

NORD: The National Organization for Rare Disorders A page devoted to distributing information about rare disorders, such as the FG Syndrome.

Orphanet Database This is a searchable resource for a variety of medical conditions.

ACC Network Provides information for individuals with brain anomalies involving the corpus callosum.

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FG Syndrome Family Alliance, Inc., 2008