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In the fall of 1999, Jenn Crowl and Jackie Morford published the first issue of FlaGStone, the official newsletter of the FG Syndrome Family Alliance, Inc. This bimonthly publication is a blend of scientific feedback, family support, parent education and humor! Each issue features an individual with the syndrome, information on traits of FGS, tips on special education advocacy, helpful hints for living with disabilities and special health care needs, and all of the latest news from the FG researchers. Annual subscription fee is $15. Consider a personal subscription, as well as gift subscriptions to family or friends.
Online:
You can subscribe to FlaGStone securely online through PayPal by clicking the button above (there is a $1 PayPal surcharge to offset our costs).
By email:
Contact the editors with your request by email at: flagstone@fg-syndrome.org
By regular mail:
FG Syndrome Family Alliance, Inc.
946 NW Circle Blvd. #290
Corvallis, OR 97330
USA
Checks or money orders should be written to: FG Syndrome Family Alliance, Inc.
No immediate family of a child diagnosed with FGS, or awaiting diagnosis, will be denied FlaGStone due to inability to pay subscription fees, please contact us at flagstone@fg-syndrome.org for more information.
Donations are also greatly appreciated. In addition to a newsletter subscription, please consider making a tax-deductible (as allowed by law) donation to the FGSFA, Inc., either by adding your contribution to your check (donation acknowledgements will indicate the amount paid less the cost of the newsletter subscription/s), or by visiting our Make a Donation page. Thank you for supporting the FG Syndrome Family Alliance, Inc., a 501(c)3 organization. Company information available by request.